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| | 被阿尔茨海默病改写的人生 | | | 南方周末 ｜ 2026-09-21 | | | |
| 声明： 本消息或因风格和篇幅原因进行过编辑，但未经核实，也不代表我们的立场、观点或建议。如有侵权，联系秒删。[ 使用条款 ] |
scroll 0 1 凌晨，母亲又要起夜。80后上海女孩蕙美睁开惺忪的双眼，陪她起身。一夜两三次，这是照护母亲的第14年。即便每夜都很疲倦，她始终坚持，没给母亲穿“拉拉裤”——“既为了防止老人尿路感染，更是跟命运抗争，不想让母亲过早丧失自主如厕的能力。”
阿尔茨海默病（AD）就是这样，一寸一寸地改写一个人：先是遗忘，然后迷路，忘记写字，失禁，直到连吃饭都需要有人把勺子递到手边。
被改写的不只患者，AD更将照护者推入了一场没有终点的“照护马拉松”——蕙美经历了从公司业务骨干，到主动换岗、离职，最终成为母亲24小时的全职照护者的过程。“没办法，你做不到平衡。”
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世界阿尔茨海默病日前夕，蕙美与母亲合影，留下热爱生活的模样。（图/受访者提供）
9月21日是世界阿尔茨海默病日，仅在中国，就有近1700万阿尔茨海默病及相关痴呆患者，且患病率、死亡率持续上升，成为威胁老年健康的重要公共卫生问题，也关乎每一个未来需要面对照护这门功课的普通人。
面对不可逆、病程漫长、照护成本高的AD，医学诊疗的进步正在试图打破僵局：从脑部成像与生物标志物检测的普及，到靶向清除有毒蛋白的疗法可及，正让“早筛、早诊、早治”成为可能。他们正试图告诉所有人——这场马拉松的胜负手，是三个字：早一步。
面对母亲，“我留了下来”
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点击朱笔，直抒胸臆